PATH for PWS is a study to help us better understand serious medical events in PWS over a 4-year period, as well as evaluate how PWS related behaviors change over time. The data from this study is intended to inform the development and clinical trial design of potential new treatments.

study information


Enrollment instructions

“While we understand more about Prader-Willi syndrome than ever before, it is critical that we continue to build on the body of knowledge to improve care and explore new treatment options. Study participation contributes to the actionable information available to our community.”

Theresa Strong, Ph.D., Director of Research Programs, FPWR, and lead PATH for PWS study investigator

Considering enrolling in the PATH for PWS study? Hear from the Wynne family on why they believe it is so important to participate.

Already enrolled in PATH for PWS? Log in here to complete your surveys.

For questions or more information, please contact: [email protected]